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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Future events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
The Adolescent Brain & PKU
1 78 downloads
Adults, Childminders, Nurseries and Schools, Children, Young Adults 06/03/2023 Download
Low Protein Sweets 2022
1 1020 downloads
Adults, Children, Dietary info, Young Adults 06/03/2023 Download
Fruit and Vegetables in PKU 2022
1 1439 downloads
Adults, Children, Dietary info, Young Adults 06/03/2023 Download
Ice Lollies, Ice Creams, Sorbets (PKU) 2021
1 663 downloads
Children, Dietary info, For parents, Young Adults 06/03/2023 Download
Suitable drinks for people with PKU
1 1095 downloads
Adults, Children, Dietary info, Young Adults 06/03/2023 Download
Branded Exchange Free Foods List
1 2449 downloads
Adults, Children, Dietary info, Young Adults 06/03/2023 Document
Blood test guidance
1 253 downloads
Adults, Children, For parents, Parents, Young Adults 03/07/2020 Download
Off to uni
1 63 downloads
Young Adults 07/03/2023 Download

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )