Council of Management
Andrew Thompson, Chair
Andrew works as Chief Executive of a charity in his professional life and brings years of expertise in charity management and fund-raising to his role as our Treasurer. He has a young son with PKU.
Kate Learoyd, Advocacy (Campaigns and Policy)
Kate worked as a solicitor and Partner in an international law firm. She now manages our campaign work and consider policy issues which will affect people with PKU. Kate has a son with PKU.
Julie Cardy, Conference Organiser
Julie is our Conference and Events manager as well as being a busy mum. She has been attending NSPKU events since her childhood and now brings her perspective and understanding of living with PKU to organising conferences which best meet the needs of our members.
Duncan is a Regional Nurse Manager/Specialist Nurse Practitioner, specialising in Community Public Health Nursing (Occupational Health). Duncan has PKU and is a pioneering advocate for lifelong treatment for PKU. Duncan is a member of the Medical Advisory Panel and provides representation of patient voices. Duncan has more recently joined the Executive Board of the ESPKU after many years managing ESPKU liaison.
Caroline Graham (Co-opted to Council of Management)
Caroline is a graphic designer and also the mum to two grown up children with PKU. Caroline is passionate about improving the lives of people with PKU and is co-opted to the Council of Management where she works on advocacy and campaigns.
Suzanne Ford (Dietitian Advisor)
Suzanne is a metabolic dietitian working for North Bristol NHS Trust Adult Metabolic service. She also works for NSPKU where she brings her expertise to dietary resource production; advocacy; media appearances, awareness raising and industry liaison.
Alison Green (Charity Coordinator)
Alison has a daughter with PKU and, as the newest member of our team, has been working very hard to expand her knowledge on the NSPKU and the work which we carry out.
Margaret Butcher (Bookkeeper)
Margaret is a professional book-keeper based in Lancashire with many years of experience. She is now looking after the finances for NSPKU where she reports to our senior team.
Medical Advisory Panel (MAP)
Prof Anita MacDonald OBE
Anita is Consultant Dietitian in Inherited Metabolic Disorders at Birmingham Children’s Hospital, and an Honorary Professor in Dietetics at Plymouth University. She is a Fellow of the RCPCH. Anita is actively involved in all aspects of IMD nutritional research, as well as teaching and development in this discipline. She has extensive research experience and is a co-author of “The complete European guidelines on phenylketonuria: diagnosis and treatment”.
Dr Gisela Wilcox
Gisela is Consultant in Adult Inherited Metabolic Disorders at Salford Royal NHS Foundation Trust. At Salford Royal she is involved in clinics, inpatient work, service development, education and clinical research.
Dr Hugh Lemonde
Hugh is a Consultant in the metabolic service at Evelina Children’s Hospital.
Barbara is a Metabolic Dietitian at NHS Greater Glasgow and Clyde with years of experience of treating children with PKU. She also organises a yearly outward bound trip for children and young people with PKU.
Dr Charlotte Dawson
Consultant in Metabolic Medicine, Birmingham. At QEH in Birmingham Charlotte provides clinics, sees inpatients, teaches and researches and she supports services outside of Birmingham as well.
Specialist Dietitian for IMD, Sheffield. Mel has been working in Metabolic Dietetics for the last 5 years and has spoken at national conferences, led workshops and published research.
Gemma is a Paediatric Metabolic Nurse Specialist at Evelina London Children’s Hospital. She supports inpatients and outpatients with metabolic conditions including those diagnosed with PKU through newborn screening. Gemma has a keen interest in PKU and the transition of the young people into Adult Metabolic services.