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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management
  • DHPR Deficiency

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
Caring for Children with PKU – Family Viewpoints
1 414 downloads
 Childminders, Nurseries and Schools, Children, Diagnosis, For parents, Parents 07/02/2024 Download
Late Diagnosed PKU
1 261 downloads
 Diagnosis 25/06/2020 Download
PKU: European Guidelines – What do they mean for adults?
1 141 downloads
 Diagnosis, Treatment 27/06/2020 Download
The Complete European Guidelines
1 202 downloads
 Diagnosis, Treatment 25/06/2020 Download

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )
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