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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
PKU Diet – the basics 2024
1 872 downloads
Adults, Children, Dietary info, Treatment 07/02/2024 Download
Eating out card – Digital version
1 776 downloads
Adults, Children, Dietary info, Parents, Treatment, Young Adults 05/12/2023 Download
Low Protein Foods available on prescription for patients with PKU
1 5180 downloads
Adults, Children, Dietary info, GP/ health visitor, Pharmacists, Prescriptions, Treatment 13/02/2024 Download
Information for Pharmacists
1 527 downloads
Pharmacists, Treatment 06/03/2023 Download
Supporting patients with PKU in the surgery
1 401 downloads
GP/ health visitor, Treatment 02/04/2020 Download
Kuvan Facts
1 1085 downloads
Treatment 27/06/2020 Download
Phenylalanine Monitoring; Quality does count
1 141 downloads
Treatment 27/06/2020 Download
Phenylketonuria: Falling off diet
1 186 downloads
Treatment 25/06/2020 Download
The importance of diet for life
1 494 downloads
Treatment 25/06/2020 Download
PKU: European Guidelines – What do they mean for adults?
1 129 downloads
Diagnosis, Treatment 27/06/2020 Download
Key European Guidelines
1 336 downloads
Diagnosis, Treatment 25/06/2020 Download
The Complete European Guidelines
1 185 downloads
Diagnosis, Treatment 25/06/2020 Download

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )

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