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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
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  • Research
    • Disorder Management
    • New Treatments
    • Diet
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    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
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  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
Low Protein Foods available on prescription for patients with PKU
1 2746 downloads
Adults, Children, Dietary info, GP/ health visitor, Pharmacists, Prescriptions, Treatment 07/03/2023 Download
Information for Pharmacists
1 253 downloads
Pharmacists, Treatment 06/03/2023 Download
Supporting patients with PKU in the surgery
1 251 downloads
GP/ health visitor, Treatment 02/04/2020 Download
Kuvan Facts
1 755 downloads
Treatment 27/06/2020 Download
Phenylalanine Monitoring; Quality does count
1 69 downloads
Treatment 27/06/2020 Download
Phenylketonuria: Falling off diet
1 98 downloads
Treatment 25/06/2020 Download
The importance of diet for life
1 277 downloads
Treatment 25/06/2020 Download
PKU: European Guidelines – What do they mean for adults?
1 62 downloads
Diagnosis, Treatment 27/06/2020 Download
Key European Guidelines
1 159 downloads
Diagnosis, Treatment 25/06/2020 Download
The Complete European Guidelines
1 95 downloads
Diagnosis, Treatment 25/06/2020 Download

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )