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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Events
    • Campaign
    • Support us
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Documents

  • All Documents
  • Adults
  • Awareness
  • Campaign
  • Childminders Nurseries and Schools
  • Children
  • Diagnosis
  • Dietary Info
  • Flyers for Fundraisers
  • Flyers Membership
  • For Parents
  • GP / Health Visitor
  • History
  • Maternal PKU
  • Parents
  • Pharmacists
  • Prescriptions
  • Starting Nursery and School
  • Travel
  • Treatments

Title Categories Update Date Download
Oral Health care for children with PKU (Phenylketonuria) a guide for caregivers
1 111 downloads
Children, Dietary info, For parents, Parents 24/01/2025 Download
Caring for Children with PKU – Family Viewpoints
1 325 downloads
Childminders, Nurseries and Schools, Children, Diagnosis, For parents, Parents 07/02/2024 Download
Eating out card – Digital version
1 776 downloads
Adults, Children, Dietary info, Parents, Treatment, Young Adults 05/12/2023 Download
Vaccines and PKU 2024
1 221 downloads
Adults, Children, Parents, Pharmacists 04/10/2024 Download
Baby Weaning Choices
1 1434 downloads
Children, Dietary info, Parents 01/02/2024 Download
Blood test guidance
1 483 downloads
Adults, Children, For parents, Parents, Young Adults 03/07/2020 Download
Hyperphenylalaninemia (HPA)
1 343 downloads
Parents 06/03/2023 Download
Life with PKU: Work in Progress
1 371 downloads
Adults, Parents 25/06/2020 Download

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )

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