Help our new campaign by writing to your MP
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!
Helpline: 030 3040 1090 • Celebrating 50 Years and Counting!
The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!
Notice of Extraordinary General Meeting NOTICE IS HEREBY GIVEN of the EXTRAORDINARY GENERAL MEETING (EGM) of THE NATIONAL SOCIETY […]
NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]
Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025
Find out how we are making our conferences more accessible… Conference Rotation
If you use sapropterin please help PKU researchers by completing this survey – just click on the link below: Administration […]
Wales day conference 11th October 2025 Book now via: https://nspku.org/nspku-conference/
If you’re interested in becoming a Trustee – we’d love to hear from you. Click on the link for further […]
Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]
NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]