Blog - The National Society for Phenylketonuria (NSPKU)

Save the Date: Northern Ireland Day Conference 17th October 2026

Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]

Please don’t forget to take part in our surveys! Click here to take part

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]

If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]

Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]

We would be very grateful for your help with a short questionnaire about your experiences with sapropterin so far. The […]

NOTICE IS HEREBY GIVEN that the 53rd ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA UK LIMITED (the […]

To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]

NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]