Blog - The National Society for Phenylketonuria (NSPKU)

Captain PHElix says hello!

Hello there, superhero friends! I’m Captain PHElix, the NSPKU’s brave, bouncy mascot. I’m five (and a half, almost six!), […]

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

NSPKU members are invited to our online community event on 28th June as we come together to celebrate International PKU […]

As International PKU Day approaches on 28 June, the National Society for Phenylketonuria (NSPKU) is inviting children, families and supporters […]

We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]

Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]

Please don’t forget to take part in our surveys! Click here to take part

Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]

If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]

Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]