Blog - The National Society for Phenylketonuria (NSPKU)

We need the NSPKU community to fill in this survey!

Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]

Please help NSPKU by filling in our survey about Autism Spectrum Disorder (ASD) for children with PKU. You can complete […]

ESPKU have produced infographics to make PKU guidelines more accessible. NSPKU is pleased to share the publication of European PKU […]

Group course for adults. Starts 8th October. This course is free of charge, and is online. Download information poster […]

You don’t have to live in Northern Ireland to attend this conference, spaces filling up fast. View the Conference […]

Hello there, superhero friends! I’m Captain PHElix, the NSPKU’s brave, bouncy mascot. I’m five (and a half, almost six!), […]

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

NSPKU members are invited to our online community event on 28th June as we come together to celebrate International PKU […]

As International PKU Day approaches on 28 June, the National Society for Phenylketonuria (NSPKU) is inviting children, families and supporters […]

We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]