Blog - The National Society for Phenylketonuria (NSPKU)

Join Us for International PKU Day 2026!

NSPKU members are invited to our online community event on 28th June as we come together to celebrate International PKU […]

As International PKU Day approaches on 28 June, the National Society for Phenylketonuria (NSPKU) is inviting children, families and supporters […]

We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]

Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]

Please don’t forget to take part in our surveys! Click here to take part

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]

If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]

Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]

We would be very grateful for your help with a short questionnaire about your experiences with sapropterin so far. The […]