Attention women and girls… Complete this survey about periods and PKU
If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]
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We need you to complete the NSPKU Survey
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
Survey – Share Your Experience of Sapropterin
We would be very grateful for your help with a short questionnaire about your experiences with sapropterin so far. The […]
NSPKU 53rd Annual General Meeting (AGM) 2026
NOTICE IS HEREBY GIVEN that the 53rd ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA UK LIMITED (the […]
Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]
Scottish Parliament debate calls for improvements in PKU services and treatment
NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]
NSPKU Annual Research Awards 2026
NSPKU Annual Research Awards 2026
Sapropterin users – We Need YOU – please help!
NOW CLOSED, THANK YOU! If you use sapropterin please help PKU researchers by completing this survey – just click on […]
NSPKU England Conference 2026 – SOLD OUT
SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe
Help our new campaign by writing to your MP
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!