Scottish Parliament debate calls for improvements in PKU services and treatment
NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]
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NSPKU Annual Research Awards 2026
NSPKU Annual Research Awards 2026
Sapropterin users – We Need YOU – please help!
If you use sapropterin please help PKU researchers by completing this survey – just click on the link below OR […]
NSPKU England Conference 2026
NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe
Help our new campaign by writing to your MP
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!
We are making our conferences more accessible
Find out how we are making our conferences more accessible… Conference Rotation
IMPORTANT NOTICE – CHANGE OF ADDRESS
As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]
PKU “S.P.O.R.T PROJECT”
Annie Skidmore, PhD candidate at Birmingham City University, would like YOUR help! Annie’s research will include exploring experiences around PKU and […]
Sapropterin accessible to all age groups in Northern Ireland
The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]