Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]
Blog
Gastrointestinal Symptoms Survey – Open now, please help!
Please help the Birmingham Children’s Hospital Dietetic Team and the NSPKU by filling out this voluntary and anonymous survey about […]
Scottish Parliament debate calls for improvements in PKU services and treatment
NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]
NSPKU Annual Research Awards 2026
NSPKU Annual Research Awards 2026
Sapropterin users – We Need YOU – please help!
NOW CLOSED, THANK YOU! If you use sapropterin please help PKU researchers by completing this survey – just click on […]
NSPKU England Conference 2026 – SOLD OUT
SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe
Help our new campaign by writing to your MP
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!
Campaign together for PKU – our new Parliamentary campaign
NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]
Wales Day Conference Cardiff 11th October 2025
Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025
We are making our conferences more accessible
Find out how we are making our conferences more accessible… Conference Rotation