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The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
If you use sapropterin please help PKU researchers by completing this survey – just click on the link below: https://forms.office.com/Pages/ResponsePage.aspx?id=slTDN7CF9UeyIge0jXdO49i7JGiPUvZEv7I7dcyqK59UQ1JCRE9OWFY0UElXNU1aOERFTFNNNEFGVC4u
Wales day conference 11th October 2025 Book now via: https://nspku.org/nspku-conference/
If you’re interested in becoming a Trustee – we’d love to hear from you. Click on the link for further […]
Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]
NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]
NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]
NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]
As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]
Save the date – NSPKU Conference – 12 April 2025 NSPKU will be holding its Conference on Saturday 12 April […]
Our charity NSPKU has been campaigning in Parliament for understanding and support for PKU since 2017. This started by people […]