Attention women and girls… Complete this survey about periods and PKU
If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]
We need you to complete the NSPKU Survey
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
Survey – Share Your Experience of Sapropterin
We would be very grateful for your help with a short questionnaire about your experiences with sapropterin so far. The […]
Sapropterin users – We Need YOU – please help!
NOW CLOSED, THANK YOU! If you use sapropterin please help PKU researchers by completing this survey – just click on […]
Do you live in Scotland? Tell us about PKU Clinic Services in Scotland
NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]
NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
NSPKU Survey for people with PKU aged over 18
This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]