Disability Living Allowance (DLA) is a non-means tested and tax-free benefit paid to under 16s who need help with their personal care or with getting around outdoors.

There are different rates of DLA; the rate you get will depend on the amount of care or support you need with your personal care or mobility. In the experience of NSPKU an award of middle rate DLA is the most typical for children with PKU.

Applying for DLA can be a challenge!  Contact us for help - we have a DLA pack which has full guidance and tips, together with reports to send with your application.

Personal Independence Payment (PIP)

Personal Independence Payment helps with some of the extra costs caused by long-term ill-health or a disability if you’re aged 16 to 64.

Navigating the PIP claims process is time-consuming and challenging.  You can also Contact us for help and our detailed guide on claiming PIP.