Ask your MP to support people with PKU
Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]
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The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]
NHS Scotland allows prescribing of sapropterin (previously known as Kuvan) for PKU NSPKU is delighted to announce that NHS Scotland […]
NSPKU has recently had discussions with BioMarin, the manufacturer of the injectable PKU medicine for adults called pegvaliase or Palynziq. […]
NHS England has today (17 December 2021) announced that it will make the medicine sapropterin for PKU available to […]
Who is NICE and what are they doing? NICE is the “National Institute for Health and Care Excellence”. It […]
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
PKU & Lockdown Greetings fellow travellers on the PKU road. My name is Polly and I write about my PKU […]
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/
Baking is a fun activity for both adults and children. Have a look at this full colour guide to baking […]