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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Living With PKU

        • Throughout Life

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  • DHPR Deficiency

Author: Helena Traill

Save the Date: Northern Ireland Day Conference 17th October 2026

04/06/202604/06/2026

Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]

Don’t forget to take part in our surveys

04/06/202604/06/2026

Please don’t forget to take part in our surveys! Click here to take part  

Bryan Pearce Art Tours: St Ives 2026

04/06/202611/06/2026

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

NSPKU Competition for International PKU Day

19/05/202619/05/2026

Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]

NSPKU England Conference 2026 – SOLD OUT

15/12/202520/03/2026

SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe  

Help our new campaign by writing to your MP

27/10/202501/12/2025

We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!

Wales Day Conference Cardiff 11th October 2025

21/08/202520/03/2026

Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025

We are making our conferences more accessible

21/08/202521/08/2025

Find out how we are making our conferences more accessible… Conference Rotation

Book Now: Wales Day Conference 2025

10/07/202520/03/2026

Wales day conference 11th October 2025 Book now via: https://nspku.org/nspku-conference/  

Watch our 50th film here

15/12/202303/07/2024



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Older posts

Recent Posts

  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU
  • Save the Date: Northern Ireland Day Conference 17th October 2026
  • Don’t forget to take part in our surveys

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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