We need the NSPKU community to fill in this survey!
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
Helpline: 030 3040 1090 • Celebrating 50 Years and Counting!
The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
ESPKU have produced infographics to make PKU guidelines more accessible. NSPKU is pleased to share the publication of European PKU […]
Group course for adults. Starts 8th October. This course is free of charge, and is online. Download information poster […]
You don’t have to live in Northern Ireland to attend this conference, spaces filling up fast. View the Conference […]
Hello there, superhero friends! I’m Captain PHElix, the NSPKU’s brave, bouncy mascot. I’m five (and a half, almost six!), […]
Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]
Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]
Please don’t forget to take part in our surveys! Click here to take part
Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]
SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe