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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Author: Helena Traill

We need the NSPKU community to fill in this survey!

16/09/2026

Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]

European Guidelines

14/09/202616/09/2026

ESPKU have produced infographics to make PKU guidelines more accessible.   NSPKU is pleased to share the publication of European PKU […]

Living With PKU ‘Rare Minds’ Online Course

10/09/202616/09/2026

Group course for adults. Starts 8th October. This course is free of charge, and is online. Download information poster   […]

Northern Ireland Conference Programme now available!

09/09/202616/09/2026

You don’t have to live in Northern Ireland to attend this conference, spaces filling up fast.   View the Conference […]

Captain PHElix says hello!

05/08/202605/08/2026

Hello there, superhero friends!   I’m Captain PHElix, the NSPKU’s brave, bouncy mascot. I’m five (and a half, almost six!), […]

NEW DATES – Bryan Pearce Art Tours: St Ives 2026

04/08/202605/08/2026

Bryan Pearce – A Gentle Soul Bryan Pearce is best known for his distinctive paintings of St Ives, admired for […]

Save the Date: Northern Ireland Day Conference 17th October 2026

04/06/202604/06/2026

Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]

Don’t forget to take part in our surveys

04/06/202604/06/2026

Please don’t forget to take part in our surveys! Click here to take part  

NSPKU Competition for International PKU Day

19/05/202619/05/2026

Please send pictures of your work or videos to info@nspku.org by the 7th June. Include your child’s name and age. […]

NSPKU England Conference 2026 – SOLD OUT

15/12/202520/03/2026

SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe  

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Older posts

Recent Posts

  • We need the NSPKU community to fill in this survey!
  • Autistic Spectrum Disorder Survey – Children with PKU
  • European Guidelines
  • Living With PKU ‘Rare Minds’ Online Course
  • Northern Ireland Conference Programme now available!

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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