Please complete the NSPKU Survey
If you have PKU, or you are a parent, family member, or carer of someone with PKU, we would be very grateful if you could complete our survey.
Your experiences and views are extremely important. The results will help the National Society for Phenylketonuria (NSPKU) better understand the real-life impact of PKU and identify where support and services can be improved.
The findings will be used as part of NSPKU evidence and engagement with the NHS, as well as to support future campaigning, awareness, and research work.
Every response helps strengthen the voice of the PKU community.
Please click the link.
