Gastrointestinal Symptoms Survey – Open now, please help!
Please help the Birmingham Children’s Hospital Dietetic Team and the NSPKU by filling out this voluntary and anonymous survey about […]
Information on NICE Kuvan Decision
NICE recommendations about sapropterin (Kuvan). What they mean for patients with PKU: Who is NICE and what has […]
Sheila – Unlocking the Treatment for PKU – Orders outside the UK
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
Book Launch! Sheila – Unlocking the treatment for PKU – UK orders
In 1951, Sheila Jones was the first person in the world to be treated for Phenylketonuria (PKU) at Birmingham Children’s […]
PKU Baking: overcoming guilt or fear of failure…. a blog by Clair
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for myself… a break from Crisps and Soup! A blog from Clair
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
Low Protein Snacks
Low Protein Snacks Download here: Snacks 2020
Taking Protein Substitutes – Clair
Taking Protein Substitutes: Is there an Emotional wall? When you start to learn how to manage your own PKU […]
Dietary Information for the Treatment of Phenylketonuria
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
Branded Exchange Free Food List
Click here to down load the list: NSPKU_Branded_Exchange-free_A4_5 This is a list giving examples of foods in 20 […]