DHPR Deficiency (a BH4 deficient condition) 1 7 downloads
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DHPR Deficiency
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14/05/2025
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Download
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Easter Treat List (low protein) 2025 1 156 downloads
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Adults, Children, Dietary info, For parents
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27/03/2025
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Download
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Oral Health care for children with PKU (Phenylketonuria) a guide for caregivers 1 133 downloads
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Children, Dietary info, For parents, Parents
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24/01/2025
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Download
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Ice Lollies 2024 1 264 downloads
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Adults, Children, Dietary info, Young Adults
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17/06/2024
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Fruit and Vegetables in PKU 2024 1 934 downloads
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Adults, Children, Dietary info, Young Adults
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17/06/2024
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Download
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Lower protein cereal foods 2024 1 376 downloads
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Adults, Children, Dietary info, Young Adults
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24/04/2024
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Low protein cheese March 2024 1 362 downloads
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Adults, Children, Dietary info, Young Adults
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23/04/2024
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Download
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Low Protein Foods for Chinese Cooking 2024 1 282 downloads
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Adults, Children, Dietary info
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08/02/2024
|
Download
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Caring for Children with PKU – Family Viewpoints 1 349 downloads
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Childminders, Nurseries and Schools, Children, Diagnosis, For parents, Parents
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07/02/2024
|
Download
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Low protein pancakes, toppings and fillings 2024 1 341 downloads
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Adults, Children, Dietary info, Young Adults
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07/02/2024
|
Download
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PKU Diet – the basics 2024 1 908 downloads
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Adults, Children, Dietary info, Treatment
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07/02/2024
|
Download
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Eating out card – Digital version 1 827 downloads
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Adults, Children, Dietary info, Parents, Treatment, Young Adults
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05/12/2023
|
Download
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Low Protein Snacks 2023 1 939 downloads
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Adults, Childminders, Nurseries and Schools, Children, Dietary info, For parents
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14/07/2023
|
Download
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Your PKU Your NSPKU 1 154 downloads
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Awareness, Flyer for fundraisers, Flyer membership
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23/06/2023
|
Download
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Vaccines and PKU 2024 1 227 downloads
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Adults, Children, Parents, Pharmacists
|
04/10/2024
|
Download
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Quick Exchange Guide 1 609 downloads
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Childminders, Nurseries and Schools, Children, Dietary info, Starting nursery and school
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22/05/2023
|
Download
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Schools snacks with suggestions for parties and festivals 1 457 downloads
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Childminders, Nurseries and Schools, Children, Dietary info, Starting nursery and school
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06/03/2023
|
Download
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Nursery Snacks with suggestions for parties and festivals 1 670 downloads
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Childminders, Nurseries and Schools, Children, Dietary info, Starting nursery and school
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22/05/2023
|
Download
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Children’s lower protein snacks 1 1910 downloads
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Children, Dietary info
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22/05/2023
|
Download
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Exchange Free Stir Fry Mixes 1 725 downloads
|
Dietary info
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22/05/2023
|
Download
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The Adolescent Brain & PKU 1 242 downloads
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Adults, Childminders, Nurseries and Schools, Children, Young Adults
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22/05/2023
|
Download
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Savoury Low Protein Alternatives 1 1942 downloads
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Adults, Children, Dietary info
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22/05/2023
|
Download
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Low Protein Sweets 2022 1 2184 downloads
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Adults, Children, Dietary info, Young Adults
|
06/03/2023
|
Download
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Suitable drinks for people with PKU 1 1920 downloads
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Adults, Children, Dietary info, Young Adults
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01/02/2024
|
Download
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Special Low Protein Foods (on Prescription) 1 953 downloads
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Adults, Children, Dietary info
|
22/05/2023
|
Download
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Statement on Aspartame 1 290 downloads
|
Dietary info
|
22/05/2023
|
Download
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Rainbow Edition of News & Views: Free to Download 1 265 downloads
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Awareness
|
22/05/2023
|
Download
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Low Protein Foods available on prescription for patients with PKU 1 5311 downloads
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Adults, Children, Dietary info, GP/ health visitor, Pharmacists, Prescriptions, Treatment
|
13/02/2024
|
Download
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Unit Guidelines for the Prescription of Low Protein Foods 1 1254 downloads
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Adults, Children, Dietary info, GP/ health visitor, Pharmacists, Prescriptions
|
22/05/2023
|
Download
|
NSPKU Weekday Menu Planner 1 537 downloads
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Childminders, Nurseries and Schools, Children, Starting nursery and school
|
22/05/2023
|
Download
|
NSPKU School Health Care Plan 1 645 downloads
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Childminders, Nurseries and Schools, Children, Starting nursery and school
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22/05/2023
|
Download
|
NSPKU Nursery Health Care Plan 1 460 downloads
|
Childminders, Nurseries and Schools, Children, Starting nursery and school
|
22/05/2023
|
Download
|
Baby Weaning Choices 1 1479 downloads
|
Children, Dietary info, Parents
|
01/02/2024
|
Download
|
Dietary Information Booklet 1 4369 downloads
|
Adults, Children, Dietary info, For parents, GP/ health visitor, Maternal PKU
|
22/05/2023
|
Download
|
Branded Exchange Free Foods List 1 4792 downloads
|
Adults, Children, Dietary info, Young Adults
|
22/05/2023
|
Download
|
The PKU Diet at School 1 2065 downloads
|
Childminders, Nurseries and Schools, Children, Dietary info, Starting nursery and school
|
01/02/2024
|
Download
|
Food Exchanges List 2023 1 9931 downloads
|
Adults, Children, Dietary info
|
22/05/2023
|
Download
|
Low protein baking guide 2023 1 1571 downloads
|
Adults, Children, Dietary info
|
22/05/2023
|
Download
|
Our NSPKU Fundraiser document 1 364 downloads
|
Flyer for fundraisers, Flyer membership
|
07/03/2023
|
Download
|
Blood test guidance 1 490 downloads
|
Adults, Children, For parents, Parents, Young Adults
|
03/07/2020
|
Download
|
Travelling with PKU (Danish Translation) 1 56 downloads
|
Travel
|
06/03/2023
|
Download
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Travelling with PKU (Dutch Translation) 1 45 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (French Translation) 1 84 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (German Translation) 1 64 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Italian Translation) 1 61 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Polish Translation) 1 64 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Portuguese Translation) 1 50 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Serbo-Croat Translation) 1 37 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Spanish Translation) 1 137 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Swedish Translation) 1 44 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU (Russian Translation) 1 46 downloads
|
Travel
|
25/06/2020
|
Download
|
Travelling with PKU 1 641 downloads
|
Travel
|
06/03/2023
|
Download
|
Off to uni 1 150 downloads
|
Young Adults
|
07/03/2023
|
Download
|
My PKU Story 1 130 downloads
|
History
|
25/06/2020
|
Download
|
PKU in the UK: The Early Years (1949 – 1979) 1 168 downloads
|
History
|
06/03/2023
|
Download
|
Hyperphenylalaninemia (HPA) 1 350 downloads
|
Parents
|
06/03/2023
|
Download
|
Life with PKU: Work in Progress 1 377 downloads
|
Adults, Parents
|
25/06/2020
|
Download
|
Prescribing issues experienced by people living with PKU in the UK 1 67 downloads
|
Survey
|
25/06/2020
|
Download
|
Reproductive experience of women living with PKU 1 67 downloads
|
Survey, Woman
|
25/06/2020
|
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|
Living with PKU: Lessons from the PKU Community 1 124 downloads
|
Survey
|
27/06/2020
|
Download
|
Low protein foods; how to get what you need 1 562 downloads
|
Children, Prescriptions
|
27/06/2020
|
Download
|
Bump’er Pack booklet 1 562 downloads
|
Maternal PKU
|
25/06/2020
|
Download
|
Maternal PKU – GP Checklist 1 204 downloads
|
Maternal PKU
|
25/06/2020
|
Download
|
Maternal PKU, Pregnancy in Women with PKU 1 348 downloads
|
Maternal PKU
|
25/06/2020
|
Download
|
A call for action 1 193 downloads
|
Campaign
|
25/06/2020
|
Download
|
Late Diagnosed PKU 1 243 downloads
|
Diagnosis
|
25/06/2020
|
Download
|
Patients’ experiences of accessing specialist dietary products for PKU 1 70 downloads
|
Campaign
|
25/06/2020
|
Download
|
Managing PKU at nursery 1 146 downloads
|
|
25/06/2020
|
Download
|
Starting nursery A-Z 1 481 downloads
|
Starting nursery and school
|
25/06/2020
|
Download
|
PKU Passport 1 692 downloads
|
Childminders, Nurseries and Schools, Children
|
27/06/2020
|
Download
|
Prescription charges for adults 1 306 downloads
|
Adults, Prescriptions
|
25/06/2020
|
Download
|
Information for Pharmacists 1 536 downloads
|
Pharmacists, Treatment
|
06/03/2023
|
Download
|
Supporting patients with PKU in the surgery 1 407 downloads
|
GP/ health visitor, Treatment
|
02/04/2020
|
Download
|
Kuvan Facts 1 1103 downloads
|
Treatment
|
27/06/2020
|
Download
|
Phenylalanine Monitoring; Quality does count 1 145 downloads
|
Treatment
|
27/06/2020
|
Download
|
Phenylketonuria: Falling off diet 1 191 downloads
|
Treatment
|
25/06/2020
|
Download
|
The importance of diet for life 1 505 downloads
|
Treatment
|
25/06/2020
|
Download
|
PKU: European Guidelines – What do they mean for adults? 1 131 downloads
|
Diagnosis, Treatment
|
27/06/2020
|
Download
|
Key European Guidelines 1 343 downloads
|
Diagnosis, Treatment
|
25/06/2020
|
Download
|
The Complete European Guidelines 1 187 downloads
|
Diagnosis, Treatment
|
25/06/2020
|
Download
|
The Politics of PKU 1 86 downloads
|
Campaign
|
25/06/2020
|
Download
|
What is PKU? 1 524 downloads
|
Awareness, Flyer for fundraisers
|
06/03/2023
|
Download
|
An introduction to Phenylketonuria 1 663 downloads
|
For parents
|
25/06/2020
|
Download
|
PKU by Faith Sheridan 1 127 downloads
|
Children
|
03/07/2020
|
Download
|
PKU exchange ready reckoner 1 1857 downloads
|
Dietary info
|
06/03/2023
|
Download
|