Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Blog
PKU Baking: overcoming guilt or fear of failure…. a blog by Clair
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for myself… a break from Crisps and Soup! A blog from Clair
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
Low Protein Snacks
Low Protein Snacks Download here: Snacks 2020
Taking Protein Substitutes – Clair
Taking Protein Substitutes: Is there an Emotional wall? When you start to learn how to manage your own PKU […]
Dietary Information for the Treatment of Phenylketonuria
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
Branded Exchange Free Food List
Click here to down load the list: NSPKU_Branded_Exchange-free_A4_5 This is a list giving examples of foods in 20 […]
School Meals – the PKU Diet at School
A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download: School_Meals A5 Single
Polly writes on “PKU in the Lockdown”
PKU & Lockdown Greetings fellow travellers on the PKU road. My name is Polly and I write about my PKU […]