Skip to content

Helpline: 030 3040 1090 • Celebrating 50 Years and Counting!

  • Facebook
  • X
  • Instagram
The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU
        • Throughout Life


        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy
        • Advice and Guidance


        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s
        • Treatments


        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU
        • Other information


        • Useful Documents
        • Useful Links
  • Get involved
    • Membership
    • NSPKU Conference
    • Events
    • Campaign
    • Support us
    • Surveys
  • Research
    • Disorder Management
    • New Treatments
    • Diet
    • Guidelines
    • PKU in Adults
    • Maternal PKU
    • NSPKU Research
    • Surveys
  • About us
    • About NSPKU
    • Our Work
    • History of NSPKU
    • Our Team
    • Grant Fund
  • Documents
  • News
    • All News
    • Surveys
    • PKU Diet
    • PKU Experiences
    • Sapropterin
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management
  • DHPR Deficiency

Category: Diet

Guides to help you shop for the PKU diet

29/05/202028/08/2020

  Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]

Low Protein Snacks

22/05/202027/07/2020

Low Protein Snacks Download here:  Snacks 2020  

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Branded Exchange Free Food List

05/05/202005/05/2020

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

School Meals – the PKU Diet at School

01/05/2020

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

New guide to PKU Food Exchanges

31/03/202008/04/2020

This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/

Low protein baking guide

27/03/202027/07/2020

Baking is a fun activity for both adults and children.  Have a look at this full colour guide to baking […]

Talking PKU in Parliament

17/02/202017/02/2020

[smartslider3 slider=7] When we started our campaign for better care for PKU in Parliament we really wanted to get across […]

Recent Posts

  • Captain PHElix says hello!
  • NEW DATES – Bryan Pearce Art Tours: St Ives 2026
  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

    Copyright © 2026 The National Society for Phenylketonuria (NSPKU) | Design by nooh Studio

    Privacy Policy | Terms & Conditions | Cookie Notification

    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )

    We use cookies to ensure that we give you the best experience on our website. If you continue to use this site we will assume that you are happy with it.