NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week.  We have received the following message about how to watch the presentation to the Panel on 28 July.


The next Clinical Priorities Advisory Group (CPAG) prioritisation round takes place on Tuesday 28 July, 10am – 3pm and the first part of this meeting is being held in public.

Due to the ongoing pandemic restrictions, this is being held as a live Microsoft Teams Event which people can watch online. be submitted via the chat function throughout the meeting, however CPAG can not address questions on the specifics of the policies or treatments under consideration. The Chair will run through the practicalities of how this will work at the beginning of the meeting.

Details of the meeting, and the policies that are under consideration are available in the agenda:

Clinical Priorities Advisory Group Agenda July 2020.pdf 

To join the meeting, you simply need to click on the links below at the time the meeting starts. If you do not have the Microsoft Teams app, you can view this through the web browser option.

CPAG Part 1, session 1 10am – 12 midday

CPAG Part 1, session 2, 12.30pm – 3pm