We need the NSPKU community to fill in this survey!
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
Autistic Spectrum Disorder Survey – Children with PKU
Please help NSPKU by filling in our survey about Autism Spectrum Disorder (ASD) for children with PKU. You can complete […]
European Guidelines
ESPKU have produced infographics to make PKU guidelines more accessible. NSPKU is pleased to share the publication of European PKU […]
Living With PKU ‘Rare Minds’ Online Course
Group course for adults. Starts 8th October. This course is free of charge, and is online. Download information poster […]
Northern Ireland Conference Programme now available!
You don’t have to live in Northern Ireland to attend this conference, spaces filling up fast. View the Conference […]
Write to your MP – ask for their support for fair treatment for PKU
We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]
Save the Date: Northern Ireland Day Conference 17th October 2026
Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]
Don’t forget to take part in our surveys
Please don’t forget to take part in our surveys! Click here to take part
Attention women and girls… Complete this survey about periods and PKU
If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]
We need you to complete the NSPKU Survey
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]