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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: News

Help our new campaign by writing to your MP

27/10/202527/10/2025 Helena TraillLeave a Comment on Help our new campaign by writing to your MP

We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!

News

Notice of Extraordinary General Meeting 11th October 2025

22/09/2025 Alison GreenLeave a Comment on Notice of Extraordinary General Meeting 11th October 2025

Notice of Extraordinary General Meeting   NOTICE IS HEREBY GIVEN of the EXTRAORDINARY GENERAL MEETING (EGM) of THE NATIONAL SOCIETY […]

News

Campaign together for PKU – our new Parliamentary campaign

22/09/202522/09/2025 kate learoydLeave a Comment on Campaign together for PKU – our new Parliamentary campaign

NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]

Campaign, Events, News

Wales Day Conference Cardiff 11th October 2025

21/08/202521/08/2025 Helena TraillLeave a Comment on Wales Day Conference Cardiff 11th October 2025

Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025

News

We are making our conferences more accessible

21/08/202521/08/2025 Helena TraillLeave a Comment on We are making our conferences more accessible

Find out how we are making our conferences more accessible… Conference Rotation

News

Sapropterin users: Please help with this survey

31/07/202531/10/2025 Suzanne FordLeave a Comment on Sapropterin users: Please help with this survey

If you use sapropterin please help PKU researchers by completing this survey – just click on the link below: Administration […]

News

NSPKU – Join us as a Trustee

20/06/2025 Alison GreenLeave a Comment on NSPKU – Join us as a Trustee

If you’re interested in becoming a Trustee – we’d love to hear from you. Click on the link for further […]

News

Price of Stamps in PKU – OfCom Interviews

15/04/202521/08/2025 Suzanne FordLeave a Comment on Price of Stamps in PKU – OfCom Interviews

Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]

News

NSPKU Scotland Conference 2025 – Our supporters

18/03/2025 annaLeave a Comment on NSPKU Scotland Conference 2025 – Our supporters

NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]

News

NSPKU Scotland Conference 2025 – Ceilidh

18/03/202518/03/2025 annaLeave a Comment on NSPKU Scotland Conference 2025 – Ceilidh

NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]

News

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Older posts

Recent Posts

  • Help our new campaign by writing to your MP
  • Notice of Extraordinary General Meeting 11th October 2025
  • Campaign together for PKU – our new Parliamentary campaign
  • Wales Day Conference Cardiff 11th October 2025
  • We are making our conferences more accessible

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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