Write to your MP – ask for their support for fair treatment for PKU
We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]
Save the Date: Northern Ireland Day Conference 17th October 2026
Save the date! Northern Ireland Day Conference is on the 17th October 2026 Click here to find out more about […]
Don’t forget to take part in our surveys
Please don’t forget to take part in our surveys! Click here to take part
Attention women and girls… Complete this survey about periods and PKU
If you are a woman or girl with PKU aged 16 or over, we would be very grateful if you […]
We need you to complete the NSPKU Survey
Please complete the NSPKU Survey If you have PKU, or you are a parent, family member, or carer of someone […]
Survey – Share Your Experience of Sapropterin
We would be very grateful for your help with a short questionnaire about your experiences with sapropterin so far. The […]
NSPKU 53rd Annual General Meeting (AGM) 2026
NOTICE IS HEREBY GIVEN that the 53rd ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA UK LIMITED (the […]
Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]
Scottish Parliament debate calls for improvements in PKU services and treatment
NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]
NSPKU Annual Research Awards 2026
NSPKU Annual Research Awards 2026