Survey on Home Monitoring for Parents of children with PKU up to 18 years old
Are you a parent of a child up to the age of 18, who has PKU? If so please […]
Information on NICE Kuvan Decision
NICE recommendations about sapropterin (Kuvan). What they mean for patients with PKU: Who is NICE and what has […]
NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
Low Protein Snacks
Low Protein Snacks Download here: Snacks 2020
Dietary Information for the Treatment of Phenylketonuria
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
School Meals – the PKU Diet at School
A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download: School_Meals A5 Single
New guide to PKU Food Exchanges
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/
Low protein baking guide
Baking is a fun activity for both adults and children. Have a look at this full colour guide to baking […]
Help with research about children’s experience of school food for PKU
Hannah Jones, working with the NSPKU, needs your help. Hannah is a dietetic student at Birmingham City University. She is […]