Survey on Home Monitoring for Parents of children with PKU up to 18 years old
Are you a parent of a child up to the age of 18, who has PKU? If so please […]
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The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
Are you a parent of a child up to the age of 18, who has PKU? If so please […]
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
Low Protein Snacks Download here: Snacks 2020
Taking Protein Substitutes: Is there an Emotional wall? When you start to learn how to manage your own PKU […]
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/