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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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        • Throughout Life


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Category: News

Online Community Meeting

06/06/2024 Alison GreenLeave a Comment on Online Community Meeting
News

NSPKU 51st Annual General Meeting (AGM) 2024

25/04/2024 Alison GreenLeave a Comment on NSPKU 51st Annual General Meeting (AGM) 2024

Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]

News

NSPKU 50th Annual Conference and AGM 2024

28/03/202428/03/2024 Alison GreenLeave a Comment on NSPKU 50th Annual Conference and AGM 2024

For a Booking Form – contact info@nspku.org

News

Ask your MP to support people with PKU

01/03/2024 kate learoydLeave a Comment on Ask your MP to support people with PKU

Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]

News

What does the NSPKU do?

29/02/2024 Alison GreenLeave a Comment on What does the NSPKU do?
News

Sapropterin accessible to all age groups in Northern Ireland

17/01/202422/01/2024 Suzanne FordLeave a Comment on Sapropterin accessible to all age groups in Northern Ireland

The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]

News

NSPKU Conference 2024

12/01/2024 Alison GreenLeave a Comment on NSPKU Conference 2024
News

Watch our 50th film here

15/12/202303/07/2024 Helena TraillLeave a Comment on Watch our 50th film here



News

NSPKU Call for Action

12/12/202312/12/2023 Helena TraillLeave a Comment on NSPKU Call for Action

 

News

AGM 2023

01/10/202312/12/2023 Iain WilliamsonLeave a Comment on AGM 2023

NOTICE TO GUARANTOR MEMBERS OF THE SOCIETY Notice is hereby given that the 50th Annual General Meeting of the National […]

News

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Recent Posts

  • Price of Stamps in PKU – OfCom Interviews
  • NSPKU Scotland Conference 2025 – Our supporters
  • NSPKU Scotland Conference 2025 – Ceilidh
  • NSPKU Scotland Conference 2025
  • IMPORTANT NOTICE – CHANGE OF ADDRESS

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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