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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
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  • Research
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    • About NSPKU
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  • Documents
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  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Author: Alison Green

ESPKU Conference Registration

17/10/202317/10/2023 Alison GreenLeave a Comment on ESPKU Conference Registration
News

37th E.S.PKU Conference 2023 – Day Tickets Available Now!

01/09/2023 Alison GreenLeave a Comment on 37th E.S.PKU Conference 2023 – Day Tickets Available Now!
News

37th E.S.PKU Conference 2023 – NSPKU Member Subsidy Details and Booking Process

18/07/202318/07/2023 Alison GreenLeave a Comment on 37th E.S.PKU Conference 2023 – NSPKU Member Subsidy Details and Booking Process
News

Host your own 50th fundraiser for the NSPKU

23/03/202330/03/2023 Alison GreenLeave a Comment on Host your own 50th fundraiser for the NSPKU
News

Recent Posts

  • ESPKU Conference Registration
  • AGM 2023
  • 37th E.S.PKU Conference 2023 – Day Tickets Available Now!
  • 37th E.S.PKU Conference 2023 – NSPKU Member Subsidy Details and Booking Process
  • Host your own 50th fundraiser for the NSPKU

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )