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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
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        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
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    • General Enquiries
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Author: Alison Green

NSPKU One Day Conference – Armagh City Northern Ireland

10/05/202310/05/2023 Alison GreenLeave a Comment on NSPKU One Day Conference – Armagh City Northern Ireland
News

Host your own 50th fundraiser for the NSPKU

23/03/202330/03/2023 Alison GreenLeave a Comment on Host your own 50th fundraiser for the NSPKU
News

Recent Posts

  • NSPKU One Day Conference – Armagh City Northern Ireland
  • Host your own 50th fundraiser for the NSPKU
  • Celebrating 50 Years & Counting!
  • Survey of Home monitoring for people with PKU who are 12 years old and over
  • Survey on Home Monitoring for Parents of children with PKU up to 18 years old

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )