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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: News

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

Save the date – NSPKU Conference – 12 April 2025

06/12/202420/03/2026

Save the date – NSPKU Conference – 12 April 2025 NSPKU will be holding its Conference on Saturday 12 April […]

Do you live in Scotland? Tell us about PKU Clinic Services in Scotland

01/10/202426/03/2026

NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]

NSPKU Race to £10K – Runner spotlight

06/08/202425/03/2026

Ellie Carnell, aged 12, is signed up to run the Kelvingrove Park 5km in Glasgow. Ellie is one of only […]

NSPKU Race to £10K

25/06/202420/03/2026

On Sunday the 15th September 2024 the PKU community will come together to take part in races around the UK […]

PKU “S.P.O.R.T PROJECT”

18/06/202420/03/2026

Annie Skidmore, PhD candidate at Birmingham City University, would like YOUR help! Annie’s research will include exploring experiences around PKU and […]

Online Community Meeting

06/06/202420/03/2026

NSPKU 51st Annual General Meeting (AGM) 2024

25/04/202420/03/2026

Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]

NSPKU 50th Annual Conference and AGM 2024

28/03/202420/03/2026

For a Booking Form – contact info@nspku.org

Ask your MP to support people with PKU

01/03/202425/03/2026

Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]

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Recent Posts

  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU
  • Save the Date: Northern Ireland Day Conference 17th October 2026
  • Don’t forget to take part in our surveys

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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