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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: News

Price of Stamps in PKU – OfCom Interviews

15/04/202520/03/2026

Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]

NSPKU Scotland Conference 2025 – Our supporters

18/03/202520/03/2026

NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]

NSPKU Scotland Conference 2025 – Ceilidh

18/03/202520/03/2026

NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]

NSPKU Scotland Conference 2025

13/02/202520/03/2026

NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

Save the date – NSPKU Conference – 12 April 2025

06/12/202420/03/2026

Save the date – NSPKU Conference – 12 April 2025 NSPKU will be holding its Conference on Saturday 12 April […]

Do you live in Scotland? Tell us about PKU Clinic Services in Scotland

01/10/202426/03/2026

NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]

NSPKU Race to £10K – Runner spotlight

06/08/202425/03/2026

Ellie Carnell, aged 12, is signed up to run the Kelvingrove Park 5km in Glasgow. Ellie is one of only […]

NSPKU Race to £10K

25/06/202420/03/2026

On Sunday the 15th September 2024 the PKU community will come together to take part in races around the UK […]

PKU “S.P.O.R.T PROJECT”

18/06/202420/03/2026

Annie Skidmore, PhD candidate at Birmingham City University, would like YOUR help! Annie’s research will include exploring experiences around PKU and […]

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Recent Posts

  • NSPKU 53rd Annual General Meeting (AGM) 2026
  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026
  • Sapropterin users – We Need YOU – please help!

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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