Sapropterin users – We Need YOU – please help!
NOW CLOSED, THANK YOU! If you use sapropterin please help PKU researchers by completing this survey – just click on […]
Helpline: 030 3040 1090 • Celebrating 50 Years and Counting!
The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
NOW CLOSED, THANK YOU! If you use sapropterin please help PKU researchers by completing this survey – just click on […]
SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe
We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!
NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]
Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025
Find out how we are making our conferences more accessible… Conference Rotation
Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]
NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]
NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]
NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]