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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: News

NSPKU England Conference 2026 – SOLD OUT

15/12/202520/03/2026

SOLD OUT NSPKU England Day Conference 18th April 2026 Crewe Hall Hotel & Spa, Crewe  

Help our new campaign by writing to your MP

27/10/202501/12/2025

We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!

Campaign together for PKU – our new Parliamentary campaign

22/09/202520/03/2026

NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]

Wales Day Conference Cardiff 11th October 2025

21/08/202520/03/2026

Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025

We are making our conferences more accessible

21/08/202521/08/2025

Find out how we are making our conferences more accessible… Conference Rotation

Price of Stamps in PKU – OfCom Interviews

15/04/202520/03/2026

Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]

NSPKU Scotland Conference 2025 – Our supporters

18/03/202520/03/2026

NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]

NSPKU Scotland Conference 2025 – Ceilidh

18/03/202520/03/2026

NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]

NSPKU Scotland Conference 2025

13/02/202520/03/2026

NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

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Recent Posts

  • Save the Date: Northern Ireland Day Conference 17th October 2026
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    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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