Write to your MP – ask for their support for fair treatment for PKU
We need YOU to write to your MP asking for their support with our Parliamentary campaign for fair treatment for […]
Campaign together for PKU – our new Parliamentary campaign
NSPKU Campaign – We Need Your Support The NSPKU is campaigning for better understanding of PKU in health and public […]
Campaign for PKU – tell your MP about the impact of PKU
Our charity NSPKU has been campaigning in Parliament for understanding and support for PKU since 2017. This started by people […]
Information on NICE Kuvan Decision
NICE recommendations about sapropterin (Kuvan). What they mean for patients with PKU: Who is NICE and what has […]
Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Talking PKU in Parliament
[smartslider3 slider=7] When we started our campaign for better care for PKU in Parliament we really wanted to get across […]