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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Living With PKU

        • Throughout Life

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  • DHPR Deficiency

Author: Suzanne Ford

Cooking for myself… a break from Crisps and Soup! A blog from Clair

15/07/202015/07/2020 Suzanne Ford

Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]

Adult, Diet, Young people

Low Protein Snacks

22/05/202027/07/2020 Suzanne Ford

Low Protein Snacks Download here:  Snacks 2020  

Adult, Children, Diet, Young people

Taking Protein Substitutes – Clair

07/05/202007/05/2020 Suzanne Ford

Taking Protein Substitutes:    Is there an Emotional wall? When you start to learn how to manage your own PKU […]

Adult, Diet, Young people

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Diet, Adult, Children, Young people

Branded Exchange Free Food List

05/05/202005/05/2020 Suzanne Ford

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

News, Diet

School Meals – the PKU Diet at School

01/05/2020 Suzanne Ford

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

Diet, Children

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Newer posts

Recent Posts

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  • NSPKU Scotland Conference 2025 – Ceilidh

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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