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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • About PKU
  • Living With PKU
        • Throughout Life


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Author: Suzanne Ford

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020 Suzanne Ford

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Diet, Adult, Children, Young people

Branded Exchange Free Food List

05/05/202005/05/2020 Suzanne Ford

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

News, Diet

School Meals – the PKU Diet at School

01/05/2020 Suzanne Ford

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

Diet, Children

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Recent Posts

  • ESPKU Conference Registration
  • AGM 2023
  • 37th E.S.PKU Conference 2023 – Day Tickets Available Now!
  • 37th E.S.PKU Conference 2023 – NSPKU Member Subsidy Details and Booking Process
  • Host your own 50th fundraiser for the NSPKU

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
    registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )