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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: News

Price of Stamps in PKU – OfCom Interviews

15/04/2025 Suzanne FordLeave a Comment on Price of Stamps in PKU – OfCom Interviews

Postage & PKU Are you living with PKU and can you take part in an online one to one interview […]

News

NSPKU Scotland Conference 2025 – Our supporters

18/03/2025 annaLeave a Comment on NSPKU Scotland Conference 2025 – Our supporters

NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]

News

NSPKU Scotland Conference 2025 – Ceilidh

18/03/202518/03/2025 annaLeave a Comment on NSPKU Scotland Conference 2025 – Ceilidh

NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]

News

NSPKU Scotland Conference 2025

13/02/202513/02/2025 Alison GreenLeave a Comment on NSPKU Scotland Conference 2025

NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]

News

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024 Alison GreenLeave a Comment on IMPORTANT NOTICE – CHANGE OF ADDRESS

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

News

Save the date – NSPKU Conference – 12 April 2025

06/12/202406/12/2024 Alison GreenLeave a Comment on Save the date – NSPKU Conference – 12 April 2025

Save the date – NSPKU Conference – 12 April 2025 NSPKU will be holding its Conference on Saturday 12 April […]

News

Do you live in Scotland? Tell us about PKU Clinic Services in Scotland

01/10/2024 kate learoydLeave a Comment on Do you live in Scotland? Tell us about PKU Clinic Services in Scotland

NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]

News

NSPKU Race to £10K – Runner spotlight

06/08/2024 annaLeave a Comment on NSPKU Race to £10K – Runner spotlight

Ellie Carnell, aged 12, is signed up to run the Kelvingrove Park 5km in Glasgow. Ellie is one of only […]

News

NSPKU Race to £10K

25/06/202426/06/2024 danielleLeave a Comment on NSPKU Race to £10K

On Sunday the 15th September 2024 the PKU community will come together to take part in races around the UK […]

News

PKU “S.P.O.R.T PROJECT”

18/06/202427/06/2024 Suzanne FordLeave a Comment on PKU “S.P.O.R.T PROJECT”

Annie Skidmore, PhD candidate at Birmingham City University, would like YOUR help! Annie’s research will include exploring experiences around PKU and […]

News

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Older posts

Recent Posts

  • Price of Stamps in PKU – OfCom Interviews
  • NSPKU Scotland Conference 2025 – Our supporters
  • NSPKU Scotland Conference 2025 – Ceilidh
  • NSPKU Scotland Conference 2025
  • IMPORTANT NOTICE – CHANGE OF ADDRESS

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    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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