Do you live in Scotland? Tell us about PKU Clinic Services in Scotland
NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]
NSPKU Race to £10K – Runner spotlight
Ellie Carnell, aged 12, is signed up to run the Kelvingrove Park 5km in Glasgow. Ellie is one of only […]
NSPKU Race to £10K
On Sunday the 15th September 2024 the PKU community will come together to take part in races around the UK […]
PKU “S.P.O.R.T PROJECT”
Annie Skidmore, PhD candidate at Birmingham City University, would like YOUR help! Annie’s research will include exploring experiences around PKU and […]
NSPKU 51st Annual General Meeting (AGM) 2024
Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]
NSPKU 50th Annual Conference and AGM 2024
For a Booking Form – contact info@nspku.org
Ask your MP to support people with PKU
Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]
Sapropterin accessible to all age groups in Northern Ireland
The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]