Blog - Page 2 of 5 - The National Society for Phenylketonuria (NSPKU)

What does the NSPKU do?

29/02/2024 Alison GreenLeave a Comment

Sapropterin accessible to all age groups in Northern Ireland

17/01/202422/01/2024 Suzanne FordLeave a Comment

The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]

NSPKU Conference 2024

12/01/2024 Alison GreenLeave a Comment

Watch our 50th film here

15/12/202303/07/2024 Helena TraillLeave a Comment

NSPKU Call for Action

12/12/202312/12/2023 Helena TraillLeave a Comment

AGM 2023

01/10/202312/12/2023 Iain WilliamsonLeave a Comment

NOTICE TO GUARANTOR MEMBERS OF THE SOCIETY Notice is hereby given that the 50th Annual General Meeting of the National […]

Host your own 50th fundraiser for the NSPKU

23/03/202330/03/2023 Alison GreenLeave a Comment

Celebrating 50 Years & Counting!

18/03/202318/03/2023 Helena TraillLeave a Comment

NSPKU is celebrating its fiftieth year as an organisation focused on supporting people with PKU. We are using this landmark […]

Sapropterin in Scotland

11/11/202212/12/2023 kate learoydLeave a Comment

NHS Scotland allows prescribing of sapropterin (previously known as Kuvan) for PKU NSPKU is delighted to announce that NHS Scotland […]

Open Letter to British Inherited Metabolic Diseases Group about Sapropterin Testing

04/11/202230/03/2023 Suzanne FordLeave a Comment

The NSPKU is requesting a review of the sapropterin testing pathway for people with PKU in England and we have […]