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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Author: kate learoyd

New guide to PKU Food Exchanges

31/03/202008/04/2020 kate learoyd

This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/

Diet, Adult, Children, Young people

Low protein baking guide

27/03/202027/07/2020 kate learoyd

Baking is a fun activity for both adults and children.  Have a look at this full colour guide to baking […]

Children, Diet

Help with research about children’s experience of school food for PKU

27/03/202027/03/2020 kate learoyd

Hannah Jones, working with the NSPKU, needs your help. Hannah is a dietetic student at Birmingham City University. She is […]

Children, Diet
NHS

NSPKU guidance re Coronavirus (COVID-19)

13/03/202027/03/2020 kate learoyd

CONSIDERATIONS FOR PEOPLE LIVING WITH PKU People living with PKU may be concerned about the impact of Coronavirus (COVID-19) and […]

Adult, Children, Diet, News

Talking PKU in Parliament

17/02/202017/02/2020 kate learoyd

[smartslider3 slider=7] When we started our campaign for better care for PKU in Parliament we really wanted to get across […]

Campaign, Diet

Meet Chloe!

17/02/202022/02/2020 kate learoyd

Hey I’m Chloe! I’m twenty- two years old and I have PKU. I currently live with my parents and brother […]

Young people

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Recent Posts

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  • IMPORTANT NOTICE – CHANGE OF ADDRESS

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    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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