Scottish Parliament debate calls for improvements in PKU services and treatment
NSPKU is pleased to note that on 13 January 2026 the Scottish Parliament debated a motion which considered how support […]
Questions and Answers about the NICE decision about Kuvan
Who is NICE and what are they doing? NICE is the “National Institute for Health and Care Excellence”. It […]
Watch the NHS England presentation about sapropterin (Kuvan)
NHS England will consider a policy to use sapropterin (Kuvan) for PKU next week. We have received the following message […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
New guide to PKU Food Exchanges
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/
Low protein baking guide
Baking is a fun activity for both adults and children. Have a look at this full colour guide to baking […]
Talking PKU in Parliament
[smartslider3 slider=7] When we started our campaign for better care for PKU in Parliament we really wanted to get across […]
Meet Chloe!
Hey I’m Chloe! I’m twenty- two years old and I have PKU. I currently live with my parents and brother […]