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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Living With PKU

        • Throughout Life

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  • DHPR Deficiency

Author: Helena Traill

Help our new campaign by writing to your MP

27/10/202501/12/2025

We need you! Please help us by writing to your MP… Here is how… Download explainer PDF Thank you!

Wales Day Conference Cardiff 11th October 2025

21/08/202520/03/2026

Find out more about the conference and book your place! Wales Day Conference Cardiff 11th October 2025

We are making our conferences more accessible

21/08/202521/08/2025

Find out how we are making our conferences more accessible… Conference Rotation

Book Now: Wales Day Conference 2025

10/07/202520/03/2026

Wales day conference 11th October 2025 Book now via: https://nspku.org/nspku-conference/  

Watch our 50th film here

15/12/202303/07/2024



NSPKU Call for Action

12/12/202320/03/2026

 

Celebrating 50 Years & Counting!

18/03/202320/03/2026

NSPKU is celebrating its fiftieth year as an organisation focused on supporting people with PKU. We are using this landmark […]

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Newer posts

Recent Posts

  • We need the NSPKU community to fill in this survey!
  • Autistic Spectrum Disorder Survey – Children with PKU
  • European Guidelines
  • Living With PKU ‘Rare Minds’ Online Course
  • Northern Ireland Conference Programme now available!

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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