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The National Society for Phenylketonuria (NSPKU)
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about care or treatment for PKU and experiences of this.
There is a part at the end for the child with PKU to respond in their own words.
Click here to do the survey:https://forms.gle/PEurPwyWQ5e7a46MA
