Gastrointestinal Symptoms Survey – Open now, please help!
Please help the Birmingham Children’s Hospital Dietetic Team and the NSPKU by filling out this voluntary and anonymous survey about […]
Sapropterin users – We Need YOU – please help!
If you use sapropterin please help PKU researchers by completing this survey – just click on the link below OR […]
Do you live in Scotland? Tell us about PKU Clinic Services in Scotland
NSPKU is collecting information about clinic services for PKU in Scotland. Here is a short survey where you can share […]
Ask your MP to support people with PKU
Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]
NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
NSPKU Survey for people with PKU aged over 18
This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]