NSPKU Survey for children with PKU aged 18 or under (for carer/parent to complete)
This survey is for children aged 18 or under (the carer/parent or guardian to complete) and the survey is about […]
NSPKU Survey for people with PKU aged over 18
This survey is for everyone with PKU aged over 18 (or their carers, parent or family member) and the survey […]
PKU Baking: overcoming guilt or fear of failure…. a blog by Clair
PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]
Cooking for myself… a break from Crisps and Soup! A blog from Clair
Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]
Guides to help you shop for the PKU diet
Shopping for the PKU diet is always challenging. Have you looked at our new colour guides with ideas of […]
Taking Protein Substitutes – Clair
Taking Protein Substitutes: Is there an Emotional wall? When you start to learn how to manage your own PKU […]
Dietary Information for the Treatment of Phenylketonuria
The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]
Branded Exchange Free Food List
Click here to down load the list: NSPKU_Branded_Exchange-free_A4_5 This is a list giving examples of foods in 20 […]
School Meals – the PKU Diet at School
A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download: School_Meals A5 Single
New guide to PKU Food Exchanges
This useful picture guide to PKU food exchanges has been compiled by Birmingham Children’s Hospital. Click here: https://nspku.org/download/food-exchanges-list/
Low protein baking guide
Baking is a fun activity for both adults and children. Have a look at this full colour guide to baking […]
Talking PKU in Parliament
[smartslider3 slider=7] When we started our campaign for better care for PKU in Parliament we really wanted to get across […]