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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
        • Useful Links
  • Get involved
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  • About us
    • About NSPKU
    • Our Work
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    • Our Team
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  • Documents
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    • All News
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    • PKU Diet
    • PKU Experiences
    • Sapropterin
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management
  • DHPR Deficiency

Category: Awareness

Your PKU Your NSPKU

Flyer membership NSPKU awareness join PKU

Rainbow Edition of News & Views: Free to Download

News and Views number 163 is a special Rainbow edition produced as an e-magazine in Spring 2020 for all NSPKU […]

What is PKU?

Flyer fundraising awareness PKU NSPKU

Recent Posts

  • NSPKU Competition for International PKU Day
  • Attention women and girls… Complete this survey about periods and PKU
  • We need you to complete the NSPKU Survey
  • Survey – Share Your Experience of Sapropterin
  • NSPKU 53rd Annual General Meeting (AGM) 2026

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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    THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
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