Sapropterin accessible to all age groups in Northern Ireland
The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]
Blog
AGM 2023
NOTICE TO GUARANTOR MEMBERS OF THE SOCIETY Notice is hereby given that the 50th Annual General Meeting of the National […]
Celebrating 50 Years & Counting!
NSPKU is celebrating its fiftieth year as an organisation focused on supporting people with PKU. We are using this landmark […]
Sapropterin in Scotland
NHS Scotland allows prescribing of sapropterin (previously known as Kuvan) for PKU NSPKU is delighted to announce that NHS Scotland […]
Open Letter to British Inherited Metabolic Diseases Group about Sapropterin Testing
The NSPKU is requesting a review of the sapropterin testing pathway for people with PKU in England and we have […]
Update on Palynziq/Pegvaliase for PKU
NSPKU has recently had discussions with BioMarin, the manufacturer of the injectable PKU medicine for adults called pegvaliase or Palynziq. […]