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NSPKU 51st Annual General Meeting (AGM) 2024
Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]

NSPKU 50th Annual Conference and AGM 2024
For a Booking Form – contact info@nspku.org

Ask your MP to support people with PKU
Ask your MP to see NSPKU in Parliament. People living with PKU still need support for their rare condition. NSPKU […]


Sapropterin accessible to all age groups in Northern Ireland
The NHS in Northern Ireland has decided to allow prescribing of sapropterin (previously known as Kuvan) for responsive patients with […]




AGM 2023
NOTICE TO GUARANTOR MEMBERS OF THE SOCIETY Notice is hereby given that the 50th Annual General Meeting of the National […]