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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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        • Throughout Life


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        • Useful Documents
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  • DHPR Deficiency

Author: Suzanne Ford

PKU Baking: overcoming guilt or fear of failure…. a blog by Clair

22/07/202025/03/2026

PKU Baking… overcoming guilt or fear of failure: Following on from my blog about cooking….baking is also something I was […]

Cooking for myself… a break from Crisps and Soup! A blog from Clair

15/07/202025/03/2026

Cooking for Myself… a break from crisps and soup! Cooking with PKU is a difficult one, as well as the […]

Low Protein Snacks

22/05/202027/07/2020

Low Protein Snacks Download here:  Snacks 2020  

Taking Protein Substitutes – Clair

07/05/202025/03/2026

Taking Protein Substitutes:    Is there an Emotional wall? When you start to learn how to manage your own PKU […]

Dietary Information for the Treatment of Phenylketonuria

05/05/202006/05/2020

The NSPKU has published a new edition of the dietary information booklet for the treatment of PKU. Click here to […]

Branded Exchange Free Food List

05/05/202005/05/2020

Click here to down load the list:  NSPKU_Branded_Exchange-free_A4_5     This is a list giving examples of foods in 20 […]

School Meals – the PKU Diet at School

01/05/2020

A practical guide for schools catering for a child with PKU (Phenylketonuria) Click here to download:  School_Meals A5 Single  

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Recent Posts

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Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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