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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Author: Alison Green

NSPKU 53rd Annual General Meeting (AGM) 2026

07/04/2026

NOTICE IS HEREBY GIVEN that the 53rd ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA UK LIMITED (the […]

Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme

18/02/202620/03/2026

  To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]

NSPKU Annual Research Awards 2026

12/01/202613/01/2026

NSPKU Annual Research Awards 2026

NSPKU Scotland Conference 2025

13/02/202520/03/2026

NSPKU Scotland Conference 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course All bookings and enquiries via info@nspku.org (not via the […]

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

Save the date – NSPKU Conference – 12 April 2025

06/12/202420/03/2026

Save the date – NSPKU Conference – 12 April 2025 NSPKU will be holding its Conference on Saturday 12 April […]

Online Community Meeting

06/06/202420/03/2026

NSPKU 51st Annual General Meeting (AGM) 2024

25/04/202420/03/2026

Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]

NSPKU 50th Annual Conference and AGM 2024

28/03/202420/03/2026

For a Booking Form – contact info@nspku.org

What does the NSPKU do?

29/02/202420/03/2026

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Recent Posts

  • NSPKU 53rd Annual General Meeting (AGM) 2026
  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026
  • Sapropterin users – We Need YOU – please help!

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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