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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
        • Holidays and Travel
        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
        • Useful Links
  • Get involved
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  • Research
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    • Maternal PKU
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  • About us
    • About NSPKU
    • Our Work
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    • Our Team
    • Grant Fund
    • Patient Experiences
  • Documents
  • News
  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management

Author: Alison Green

Online Community Meeting

06/06/2024 Alison GreenLeave a Comment on Online Community Meeting
News

NSPKU 51st Annual General Meeting (AGM) 2024

25/04/2024 Alison GreenLeave a Comment on NSPKU 51st Annual General Meeting (AGM) 2024

Notice of AGM NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA […]

News

NSPKU 50th Annual Conference and AGM 2024

28/03/202428/03/2024 Alison GreenLeave a Comment on NSPKU 50th Annual Conference and AGM 2024

For a Booking Form – contact info@nspku.org

News

What does the NSPKU do?

29/02/2024 Alison GreenLeave a Comment on What does the NSPKU do?
News

NSPKU Conference 2024

12/01/2024 Alison GreenLeave a Comment on NSPKU Conference 2024
News

Host your own 50th fundraiser for the NSPKU

23/03/202330/03/2023 Alison GreenLeave a Comment on Host your own 50th fundraiser for the NSPKU
News

Recent Posts

  • Campaign for PKU – tell your MP about the impact of PKU
  • Do you live in Scotland? Tell us about PKU Clinic Services in Scotland
  • NSPKU Race to £10K – Runner spotlight
  • NSPKU Race to £10K
  • PKU “S.P.O.R.T PROJECT”

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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