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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

MENUMENU
  • Home
  • About PKU
  • Living With PKU

        • Throughout Life

        • New diagnosis of PKU?
        • During childhood
        • As a teenager or young adult
        • As an adult
        • During and after pregnancy

        • Advice and Guidance

        • School and Nursery
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        • Living with PKU – Claiming Benefits
        • Blood test advice
        • Carers of people with PKU
        • FAQ’s

        • Treatments

        • Clinical centres for PKU
        • Dietary Information
        • Non-Dietary Treatments
        • Untreated or late treated PKU

        • Other information

        • Useful Documents
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  • Get involved
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  • Research
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  • About us
    • About NSPKU
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  • Documents
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  • Contact us
    • General Enquiries
    • Emergency Contacts
    • Council of Management
  • DHPR Deficiency

Author: Alison Green

Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme

18/02/202618/02/2026 Alison GreenLeave a Comment on Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme

  To reserve your place please email NSPKU on: info@nspku.org There will be a maximum of 12 participants, on a […]

News

NSPKU Annual Research Awards 2026

12/01/202613/01/2026 Alison GreenLeave a Comment on NSPKU Annual Research Awards 2026

NSPKU Annual Research Awards 2026

News

IMPORTANT NOTICE – CHANGE OF ADDRESS

30/12/2024 Alison GreenLeave a Comment on IMPORTANT NOTICE – CHANGE OF ADDRESS

As from Monday 6th January 2025, the NSPKU’s new postal address will be; NSPKU (UK) Ltd PO Box 862 CHESTERFIELD […]

News

What does the NSPKU do?

29/02/2024 Alison GreenLeave a Comment on What does the NSPKU do?
News

NSPKU Conference 2024

12/01/2024 Alison GreenLeave a Comment on NSPKU Conference 2024
News

Host your own 50th fundraiser for the NSPKU

23/03/202330/03/2023 Alison GreenLeave a Comment on Host your own 50th fundraiser for the NSPKU
News

Recent Posts

  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Gastrointestinal Symptoms Survey – Open now, please help!
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026
  • NSPKU England Conference 2026

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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