Notice of AGM
NOTICE IS HEREBY GIVEN that the 51st ANNUAL GENERAL MEETING (AGM) of THE NATIONAL SOCIETY FOR PHENYLKETONURIA UK LIMITED (the ‘Company’) will be held at Chesford Grange Hotel, Kenilworth, CV8 2LD on 18 MAY 2024 at 5.30 pm for the purpose of transacting the following business.
1 Welcome by the Chair.
2 Apologies for absence.
3 Notification of proxy voting slips received.
4 Minutes of the 50th Annual General Meeting.
5 Matters arising from the 50th Annual General Meeting minutes.
6 Chair’s report and Directors’ report.
7 Auditors’ report.
8 Financial report and presentation of accounts.
9 Appointment of Honorary Auditors for the ensuing year.
10 Election to the Council of Management and members retiring by rotation as follows (Julie Cardy and Duncan Noble-Nesbitt retiring by rotation and standing for re-election) :
Re-election of Andrew Thompson as Chair and election as member of the Council of Management.
Election of Kate Learoyd as Secretary and member of the Council of Management.
Election of Amisha Bagri as member of the Council of Management.
Election of Emma Vardy as member of the Council of Management
Election of Anita MacDonald as member of the Council of Management
Re-Election of Julie Cardy as member of the Council of Management
Re-election of Duncan Noble-Nesbitt as member of the Council of Management
Election of John Skidmore as member of the Council of Management
Election of Christopher Cassidy as member of the Council of Management.
Election of Tom Chimiak as member of the Council of Management
Election of Caroline Graham as member of the Council of Management
Election of Sara Noble-Nesbitt as member of the Council of Management
11 Any other business duly notified to the Secretary before 12.00 noon on 13th May 2024.
12 Closure of the meeting by the Chair.
Signed
Andrew Thompson
Chair
Information to members about Our Annual General Meeting
Our AGM will be at 5.30 pm on 18th May at Chesford Grange Hotel, Kenilworth, CV8 2LD.
Have your say about our charity by voting
As a membership charity we are committed to working hard to support people with PKU. All our members can have their say about the way the charity is run. You can do this by attending our AGM in person or by voting by post.
You can attend the AGM at Chesford Grange Hotel, which is where our Annual Conference will be held.
Alternatively, you can complete the voting form (known as a Proxy Form) and post it to us. The voting forms are within this AGM information pack.
All your voting forms will need to be received by 16 May 2024 so that your vote can count. You will also need to sign and date the voting form.
You can also provide comments, ideas and questions in other ways
Members can provide feedback and ideas to us by…
Emailing us – info@nspku.org
Joining us at our Annual Conference which provides many ways to take part, or
Join in our Online Community Events.
AGM Guide
NSPKU has held an open recruitment process to select new Trustees (also known as Members of the Council of Management) to join our existing Council of Management. Successful candidates were selected and co-opted to the Council of Management.
The Council of Management ask that the appointment of all the Trustees and office holders are voted on by Members.
Andrew Thompson – Chair
The Council of Management recommends that Andrew Thompson is re-elected as a Member of the Council of Management and that his appointment as Chair is confirmed by the membership.
Andrew works as Chief Executive of a charity in his professional life and brings years of expertise in charity management to his role as our Chair. He has a young son with PKU. As Chair, Andrew wants to grow the charity, so we can do more to help people with PKU and their families.
Kate Learoyd, Secretary
The Council of Management recommends that Kate Learoyd is elected as a Member of the Council of Management and that her appointment as Secretary is confirmed by the membership.
Kate worked as a solicitor and Partner in an international law firm. Kate has a son with PKU and has been very committed to improving access to modern treatments and good clinical support. She manages our campaign work and considers policy issues which will affect people with PKU. As Secretary, Kate wishes to involve our members more in the running of our charity by improving transparency and communication.
Amisha Bagri
The Council of Management recommends that Amisha Bagri is elected as a Member of the Council of Management.
Amisha works in the management team of a diverse set of global businesses. Her key focus is healthcare, where she champions investments in disruptive technologies. Amisha is passionate about patient centred outcomes and is a powerful advocate for the treatment of rare diseases. Amisha has a young son with DHPR, an atypical form of PKU and wants to support the diverse community of PKU patients and their care providers.
Tom Chimiak
The Council of Management recommends that Tom Chimiak is elected as a Member of the Council of Management.
Tom is an award-winning filmmaker and senior lecturer in filmmaking at Leeds Arts University. He has PKU, delivered NSPKU and ESPKU presentations and worked on various PKU events / video work to further the community voice. He is very keen to develop the community engagement further and increasing the visibility of PKU.
Professor Anita MacDonald OBE
The Council of Management recommends that Anita MacDonald is elected as a Member of the Council of Management.
Anita is Consultant Dietitian in Inherited Metabolic Disorders at Birmingham Children’s Hospital, and an Honorary Professor in Dietetics at Plymouth University. She is a Fellow of the RCPCH. Anita is actively involved in all aspects of metabolic disease nutritional research, as well as teaching and development in this discipline. She has extensive research experience and is a co-author of “The complete European guidelines on phenylketonuria: diagnosis and treatment”.
Christopher Cassidy
The Council of Management recommends that Christopher Cassidy is elected as a Member of the Council of Management.
Chris lives in Northern Ireland and works in retail management. He has a young son with PKU. Chris has been extensively involved in campaigning for equal access to sapropterin and improved treatment and care for people with PKU in Northern Ireland. In joining the Council of Management, Chris wants to improve the charity’s impact in Northern Ireland and other regions of the UK.
Professor Emma Vardy
The Council of Management recommends that Professor Emma Vardy is elected as a Member of the Council of Management.
Emma lives and works in the north-west of England and is mum to a daughter with PKU. She is a doctor working in the NHS and an Honorary Professor of Geriatric Medicine. She has extensive research experience in the care of older people and has an interest in the health of people with PKU as they age. She is keen to ensure that research priorities are identified based on what matters most to people with PKU, and to ensure that clinical guidance is shaped by the lived experience of people with PKU.
Julie Cardy
The Council of Management recommends that Julie Cardy is re-elected as a Member of the Council of Management.
Julie is our Conference and Events manager as well as being a busy mum. She has been attending NSPKU events since her childhood and now brings her perspective and understanding of living with PKU to organising conferences which best meet the needs of our members.
Duncan Noble-Nesbitt
The Council of Management recommends that Duncan Noble-Nesbitt is re-elected as a Member of the Council of Management.
Duncan is a Regional Nurse Manager/Specialist Nurse Practitioner, specialising in Community Public Health Nursing (Occupational Health). Duncan has PKU and is a pioneering advocate for lifelong treatment for PKU. Duncan is a member of the Medical Advisory Panel and provides representation of patient voices. Duncan has more recently joined the Executive Board of the ESPKU after many years as the ESPKU delegate representative for NSPKU.
John Skidmore
The Council of Management recommends that John Skidmore is re-elected as a Member of the Council of Management.
John was a Corporate Director including Director of Adult Social Services until recently retiring after 41 years in Local Government. He has served as a Director on a number of charity Boards and been involved with the NHS. John has a daughter with PKU. John leads our work to strengthen the charity, including governance and how we conduct our business. He is also working on our research strategy which has a national and international focus.
Caroline Graham
The Council of Management recommends that Caroline Graham is elected as a Member of the Council of Management.
Caroline is a graphic designer and has also worked in advertising. She is also the mum to two grown up children with PKU. Caroline is passionate about improving the lives of people with PKU and their families. Caroline works on advocacy, campaigns and visual communications.
Sara Noble-Nesbitt
The Council of Management recommends that Sara Noble-Nesbitt is elected as a Member of the Council of Management.
Sara is an engineering management professional who has experience working in industry and higher education. She is currently the ESPKU rep for the society, which gives a forum to collectively share experiences from different societies and campaign on common issues. She was introduced to the PKU world after meeting her husband Duncan and has attended NSPKU events over the past 25 years. Having seen the advances in dietary management and treatment during that time, she is keen that all with PKU are able to access and benefit from these and live their lives to the full.
Proxy Voting Form
National Society for Phenylketonuria UK Limited
Annual General Meeting 18 May 2024
I, ___________________ [name of member] of [address] _____________________________________________________hereby confirm that I am a Guarantor member of the charity or I hereby consent to be a voting member of the National Society for Phenylketonuria UK Limited (“the Charity”) in accordance with the Memorandum of Association.
Further, I being a member of the Charity hereby appoint (insert name) _________________________________________________________________ or the Chairperson of the meeting, Andrew Thompson as my proxy to vote for me and on my behalf, at the Annual General Meeting of the Charity, to be held at Chesford Grange Hotel, Kenilworth, CV8 2LD on Saturday 18th May 2024 at 5.30 pm and at any adjournment thereof in the following manner:
| No. | Business to be transacted | For | Against | Abstain |
| 1 | Adoption of Financial Statements for the Year ended 31 October 2023 | |||
| 2 | Adoption of Annual Report for Financial Year ended on 31 October 2023 | |||
| 3 | *Appointment/ Re-appointment of Auditor | |||
| 4.1 | Re-election of Andrew Thompson as Chair and member of the Council of Management. | |||
| 4.2 | Election of Kate Learoyd as Secretary and member of the Council of Management. | |||
| 4.3 | Election of Amisha Bagri as member of the Council of Management. | |||
| 4.4 | Election of Emma Vardy as member of the Council of Management | |||
| 4.5 | Re-Election of Julie Cardy as member of the Council of Management. | |||
| 4.6 | Election of Christopher Cassidy as member of the Council of Management. | |||
| 4.7 | Election of Tom Chimiak as member of the Council of Management | |||
| 4.8 | Election of Caroline Graham as member of the Council of Management | |||
| 4.9 | Election of Anita MacDonald as member of the Council of Management | |||
| 4.10 | Re-election of Duncan Noble-Nesbitt as member of the Council of Management | |||
| 4.11 | Re-election of Sara Noble-Nesbitt as member of the Council of Management | |||
| 4.12 | Re-election of John Skidmore as member of the Council of Management | |||
Important Notes:
- Please tick with “√” within the relevant box for each matter that will be transacted at the Annual General Meeting.
- The Charity shall be entitled to reject the proxy form if it is incomplete, improperly completed or illegible or where the true intentions of the appointer are not ascertainable from the instructions of the appointer specified in the proxy form.
- The completed proxy form must be deposited at the office of the Charity at NSPKU (UK) Ltd PO Box 6046, Sheffield, S12 9ET at least 2 days before the time for holding the Annual General Meeting.
- The proxy form must be written by the Member or by his attorney duly authorised in writing. Where the proxy form is executed by a corporation, it must be executed either under its seal or under the hand of an officer or attorney duly authorised.
