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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Prescriptions

Low Protein Foods available on prescription for patients with PKU

This is a downloadable list of the low protein foods available on prescription for patients with PKU – last updated […]

Unit Guidelines for the Prescription of Low Protein Foods

This is a downloadable guide to the amount of low protein foods which can be prescribed for patients with PKU […]

Low protein foods; how to get what you need

Low protein food products prescriptions management PKU News & Views article issue 151 Barbara Cochrane GP pharmacy doctor tips problems

Prescription charges for adults

Prescriptions charges adults exemption diet restricted NHS products low protein

Recent Posts

  • NSPKU 53rd Annual General Meeting (AGM) 2026
  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026
  • Sapropterin users – We Need YOU – please help!

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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