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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Children

Low Protein Foods for Chinese Cooking 2026

Here is the 2026 update of the downloadable photobook for low protein foods for Chinese cooking, developed and kindly shared […]

NSPKU School and College Letter

Downloadable letter about extra time in schools

NSPKU Feeding Toddlers

NSPKU A Guide to Weaning

NSPKU Aspartame Factsheet 2026

Aspartame In Medicines: The Facts Download or Print

Low protein Christmas Treats part 2

Here is Low protein Christmas treats photobook (part 2) which is 37 pages of ALL things christmassy (savoury items, sauces, […]

Low protein Christmas treats Part 1

This is a 71 page low protein Christmas treats photobook (part 1) to download (with all things Sweet in it; […]

Oral Health care for children with PKU (Phenylketonuria) a guide for caregivers

Fruit and Vegetables in PKU 2026

  This is a 20 page downloadable document showing fruit and vegetables which are suitable in the PKU diet, both […]

Lower protein cereal foods 2024

Here is a 15 page downloadable photobook with lower protein “free from” cereal options for use in the PKU diet.  […]

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Recent Posts

  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU
  • Save the Date: Northern Ireland Day Conference 17th October 2026
  • Don’t forget to take part in our surveys

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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