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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Children

NSPKU Aspartame Factsheet 2026

Aspartame In Medicines: The Facts Download or Print

Low protein Christmas Treats part 2

Here is Low protein Christmas treats photobook (part 2) which is 37 pages of ALL things christmassy (savoury items, sauces, […]

Low protein Christmas treats Part 1

This is a 71 page low protein Christmas treats photobook (part 1) to download (with all things Sweet in it; […]

Oral Health care for children with PKU (Phenylketonuria) a guide for caregivers

Fruit and Vegetables in PKU 2026

  This is a 20 page downloadable document showing fruit and vegetables which are suitable in the PKU diet, both […]

Lower protein cereal foods 2024

Here is a 15 page downloadable photobook with lower protein “free from” cereal options for use in the PKU diet.  […]

Caring for Children with PKU – Family Viewpoints

This downloadable booklet has been written by parents and families who live with PKU and care for children who have […]

Low protein pancakes, toppings and fillings 2026

      Here is the 2026 update of the downloadable photobook for low protein pancakes, toppings and fillings, developed […]

Eating out card – Digital version

This is a digital version of the Eating Out card which all new members get (a credit card size info […]

Vaccines and PKU 2024

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Recent Posts

  • Survey – Share Your Experience of Sapropterin
  • NSPKU 53rd Annual General Meeting (AGM) 2026
  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026

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    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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