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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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  • About PKU
  • Living With PKU

        • Throughout Life

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  • DHPR Deficiency

Author: anna

Join Us for International PKU Day 2026!

18/06/2026

NSPKU members are invited to our online community event on 28th June as we come together to celebrate International PKU […]

Celebrate PKU day with our new colouring sheet!

18/06/2026

As International PKU Day approaches on 28 June, the National Society for Phenylketonuria (NSPKU) is inviting children, families and supporters […]

NSPKU Scotland Conference 2025 – Our supporters

18/03/202520/03/2026

NSPKU Scotland Conference – Our supporters 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Thank you Tunnocks for supporting our […]

NSPKU Scotland Conference 2025 – Ceilidh

18/03/202520/03/2026

NSPKU Scotland Conference – Ceilidh fun! 12th April 2025 Glasgow Westerwood Hotel Spa and Golf Course Just announced! We have […]

NSPKU Race to £10K – Runner spotlight

06/08/202425/03/2026

Ellie Carnell, aged 12, is signed up to run the Kelvingrove Park 5km in Glasgow. Ellie is one of only […]

Recent Posts

  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU
  • Save the Date: Northern Ireland Day Conference 17th October 2026
  • Don’t forget to take part in our surveys

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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