NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.
NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU.
We host informative conferences every year where members can enjoy being together.
England – 18th April 2026 Northern Ireland – October 2026
We need to hear your voice! We listen to you through our surveys and at our conferences. We gather information to make change.
We understand how important it is for youngsters to make friends and share experiences with others like themselves.
The NSPKU relies on fundraising to support the work we do.
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