Helpline: 030 3040 1090 • Celebrating 50 Years and Counting!

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The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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About PKU
Living With PKU
- - - Throughout Life
    - New diagnosis of PKU?
    - During childhood
    - As a teenager or young adult
    - As an adult
    - During and after pregnancy
  - - Advice and Guidance
    - School and Nursery
    - Holidays and Travel
    - Living with PKU – Claiming Benefits
    - Blood test advice
    - Carers of people with PKU
    - FAQ’s
  - - Treatments
    - Clinical centres for PKU
    - Dietary Information
    - Non-Dietary Treatments
    - Untreated or late treated PKU
  - - Other information
    - Useful Documents
    - Useful Links
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Get Involved

For more information use our Contact page or helpline: 030 3040 1090

For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

You can also use our documents library to access lots of important information

THE NATIONAL SOCIETY FOR PHENYLKETONURIA (UNITED KINGDOM) LIMITED is a charity
registered with the Charity Commission (Company No. 01256124 Charity No. 273670 )