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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Parents

NSPKU School and College Letter

Downloadable letter about extra time in schools

NSPKU Feeding Toddlers

NSPKU A Guide to Weaning

NSPKU Aspartame Factsheet 2026

Aspartame In Medicines: The Facts Download or Print

Low protein Christmas Treats part 2

Here is Low protein Christmas treats photobook (part 2) which is 37 pages of ALL things christmassy (savoury items, sauces, […]

Low protein Christmas treats Part 1

This is a 71 page low protein Christmas treats photobook (part 1) to download (with all things Sweet in it; […]

Oral Health care for children with PKU (Phenylketonuria) a guide for caregivers

Caring for Children with PKU – Family Viewpoints

This downloadable booklet has been written by parents and families who live with PKU and care for children who have […]

Eating out card – Digital version

This is a digital version of the Eating Out card which all new members get (a credit card size info […]

Vaccines and PKU 2024

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Older posts

Recent Posts

  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Gastrointestinal Symptoms Survey – Open now, please help!
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026
  • NSPKU England Conference 2026

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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