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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Adults

Unit Guidelines for the Prescription of Low Protein Foods

This is a downloadable guide to the amount of low protein foods which can be prescribed for patients with PKU […]

Dietary Information Booklet

Dietary Information Booklet : This booklet explains everything about the PKU diet

Branded Exchange Free Foods List

  This is a 24 page downloadable list with examples of exchange free foods in 19 different categories. Thank you […]

Blood test guidance

Life with PKU: Work in Progress

Sharon Buckley life PKU NHD article issue 134 May 2018 parent

Prescription charges for adults

Prescriptions charges adults exemption diet restricted NHS products low protein

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Newer posts

Recent Posts

  • Survey – Share Your Experience of Sapropterin
  • NSPKU 53rd Annual General Meeting (AGM) 2026
  • Living With PKU (for 18 – 35 year olds) An 8-week Facilitated Group Programme
  • Scottish Parliament debate calls for improvements in PKU services and treatment
  • NSPKU Annual Research Awards 2026

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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