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The National Society for Phenylketonuria (NSPKU)

The National Society for Phenylketonuria (NSPKU)

NSPKU is the only UK charity dedicated to improving the lives of people living with the rare condition PKU. Our goal is to support individuals and families living with Phenylketonuria across the UK.

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Category: Adults

Suitable drinks for people with PKU

Here is a downloadable photobook which covers drinks suitable for people with PKU – this has been developed and kindly […]

Special Low Protein Foods (on Prescription) 2026

  This is a 26 page downloadable photobook showing low protein foods which are available on prescription. Thank you to […]

Low Protein Foods available on prescription for patients with PKU

This is a downloadable list of the low protein foods available on prescription for patients with PKU – last updated […]

Unit Guidelines for the Prescription of Low Protein Foods

This is a downloadable guide to the amount of low protein foods which can be prescribed for patients with PKU […]

Dietary Information Booklet

Dietary Information Booklet : This booklet explains everything about the PKU diet

Branded Exchange Free Foods List

  This is a 24 page downloadable list with examples of exchange free foods in 19 different categories. Thank you […]

Blood test guidance

Life with PKU: Work in Progress

Sharon Buckley life PKU NHD article issue 134 May 2018 parent

Prescription charges for adults

Prescriptions charges adults exemption diet restricted NHS products low protein

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Newer posts

Recent Posts

  • Join Us for International PKU Day 2026!
  • Celebrate PKU day with our new colouring sheet!
  • Write to your MP – ask for their support for fair treatment for PKU
  • Save the Date: Northern Ireland Day Conference 17th October 2026
  • Don’t forget to take part in our surveys

Recent Comments

    For more information use our Contact page or helpline: 030 3040 1090

     

    For PKU Unplanned Pregnancy Emergency Advice please contact your local centre.

     

    You can also use our documents library to access lots of important information

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