NSPKU Conference

NSPKU hold conferences every year, in 2026 we are having two conferences, one in England and one in Northern Ireland. The England conference is flexible, you can join us with a 24 hour package or just for the day. The Northern Ireland conference is for one day. Check the NSPKU booking form for more details. The PKU diet is fully catered for, children have activities and there are speakers to give information on research, diet or living with PKU. The weekend conference is aimed at everyone living with PKU, including parents learning about PKU for the first time and adults with PKU looking for new ideas and support.

One of the benefits of NSPKU membership are discounted conference rates.

We also go “on the road” with regular one day regional conferences around the UK.

Try and join us!

 

NSPKU England Day Conference
18th April 2026
Crewe Hall Hotel & Spa, Crewe

 

Now available for booking:
Word Document Booking Form
PDF Booking Form

 

NSPKU Wales Day Conference
11th October 2025
Angel Hotel Cardiff

 

Thank you to everyone who attended, here are some of the highlights...

 

Dr Gisela Wilcox, Consultant Metabolic Physician

PKU update European Guidelines

Prof Anita Mac Donald, Consultant Metabolic Dietitian

Whats in the Treatment Pipeline?

Prof Emma Vardy, Northern care Alliance, Manchester

Research update - Phe & Menstrual cycle

Panelists; Annelise, Ifan, Heulwen, Steve, Vicki and Chris

PKU Living - The Welsh experience