The NSPKU is run by the Council of Management who are all volunteers unless stated otherwise.
For general enquiries, please contact the administrator at info@nspku.org.
Individuals can be contacted by email addresses below:
| Position | Name | Status | Contact Details |
|---|---|---|---|
| Chair | Andrew Thompson | Parent of a person with PKU | chair@nspku.org |
| Secretary | Kate Learoyd | Parent of a person with PKU | secretary@nspku.org |
| Hon Treasurer | Vacant Position | Vacant | treasurer@nspku.org |
| Publications | Alison Green | Professional, Paid | 030 3040 1090 publications@nspku.org |
| Conference Organiser | Alison Green | Professional, Paid | conference@nspku.org |
| Spring Draw Officer | Vacant Position | Vacant | springdraw@nspku.org |
| Support group co-ordinator | Alison Green | Professional, Paid | supportgroups@nspku.org |
| Society Dietitian (Adults) | Suzanne Ford | Professional, Paid | 020 3397 7494 suzanne.ford@nspku.org |
| Charity Coordinator | Alison Green | Professional, Paid | info@nspku.org |
| Bookkeeper | Margaret Butcher | Professional, Paid | 030 3040 1090 bookkeeper@nspku.org |
| Young adults | Vacant Position | Vacant | youngadults@nspku.org |
| Editor News & Views | Alison Green | Parent of a person with PKU | editor@nspku.org |
| IT Coordinator | Vacant Position | Vacant | webmaster@nspku.org |
| Membership | Margaret Butcher | Professional, Paid | 030 3040 1090 membership@nspku.org |
| Campaign Manager | Kate Learoyd | Parent of a person with PKU | learoyds@me.com |
| ESPKU Rep | Sara Noble-Nesbitt | Family member with PKU | espku@nspku.org |