Congratulations on your new baby!

We understand that a diagnosis of phenylketonuria (PKU) can be very difficult. There is a lot to think about and you need to take it one step at a time. We are here to help.

In this short film, produced by parents and friends of children with PKU, we answer some of the questions you might have.


If you would like to talk to someone, call our helpline or send an email.

We produce a New parent pack which you should have received on your early clinic visit. If you haven’t received one let us know.