The carers of children with PKU have the crucial job of keeping their children safe and well through delivery of the PKU diet every day.
Useful dietary information:
The Dietary Information Booklet Dietary Information for the Treatment of Phenylketonuria
The "ready reckoner" for calculating exchanges Ready Reckoner
Guide to food exchanges (colour guide) Food Exchanges List 2020
Guide to plant based milk, yogurts and desserts Milk, yogurts and desserts
Guide to branded free foods Branded Exchange Free Foods List
Guide to Sweets (colour) Low Protein Sweet Guide
Guide to Baby Foods (colour guide) Baby Food Guide
Guide to low protein baking ingredients (colour guide) Baking Guide
Ice Lollies, ice creams and sorbets (colour guide) Ice Lolly Guide 2020
Resources to support parents and carers:
Illustrated "passport" to help explain PKU to children or carers PKU passport
Useful guide to starting nursery A to Z of starting nursery
Other resources to be added soon:
- Managing PKU treatment in your family life
- A step by step guide for parents and carers
- Advice for grandparents, family carers and childminders